I ran across this article today and thought it really showed how far CF treatment has come in recent years. It’s a lengthy interview with longtime CF researcher, Bonnie Ramsey. It’s an amazing article about how drugs to treat the underlying cause of CF are in phase II and III clinical trials and what that [...]
Filed under: Cystic Fibrosis, News on August 7th, 2009 | No Comments »
Grace had a three month checkup at the CF clinic yesterday and continues to pass with flying colors. She is up to 47 inches tall and around 44 pounds. This puts her close to the 5oth percentile in both weight and height. She has been doing great this summer. She also blew a personal best [...]
Filed under: Cystic Fibrosis, News on July 31st, 2009 | No Comments »
Thought I would update everyone on Grace’s regular CF appointment she had on Monday. She has an appointment every three months. Her appointment went great and the CF doctors were again impressed with how good she looked. She is holding steady on her growth curve and her chest X-Ray came back clear. Grace has had [...]
Filed under: Cystic Fibrosis, News on February 4th, 2009 | No Comments »
I wanted to share my donation letter with everyone. I send this letter out each year and use it to both update update everyone on Grace and give some background on why giving to the Cystic Fibrosis Foundation is important to me. I also send out a picture and a couple of articles about CF. [...]
Filed under: Cystic Fibrosis, Great Strides on April 14th, 2008 | No Comments »
Grace had her regular CF appointment yesterday. Her weight was about the same, but she has grown almost an inch since her last appointment. So, she is average in height and a bit below in weight. Her chest X-Ray looked great according to her doctor and she has been pretty healthy all winter. Unfortunately, she [...]
Filed under: Cystic Fibrosis, News on March 27th, 2008 | No Comments »
Here is a great Forbes magazine article about CF and some of the recent advances that really attack CF from the root. I’ve always felt that the best thing we can do for Grace is to keep her lungs as healthy as possible while we wait for the medical advancements to come along. Right now, [...]
Filed under: Cystic Fibrosis on September 1st, 2006 | No Comments »
A great article about the progress of CF research funded by the Cystic Fibrosis Foundation. All donations collected for walkforgrace.com or our Great Strides team go directly to this foundation. Click here for the USA Today article.
Filed under: Cystic Fibrosis on February 14th, 2006 | No Comments »