Team Grace Raised Over $5,000 Fight CF

Yet again our team came through and raised over $5,000 for Great Strides. The walk was great, tons of people showed up, and although a bit muddy, the weather was great. Thanks to all who participated and donated. Click here for a couple more pics.

Walking along Brush Creek

Walking along Brush Creek

Buddy Bass Tourney Featured in Nevada Daily News

http://www.nevadadailymail.com/story/1530549.html

Over 25 Teams Fish for a Cure for Cystic Fibrosis

The 5th Annual “Fishing For a Cure” Buddy Bass Tournament, held April 11th in Rich Hill, Missouri, raised over $1,100 in the fight against cystic fibrosis, a deadly genetic disease. With a total of 27 teams from all over the area, this year’s competition was the biggest ever. The charity tournament is an annual event to benefit Team Gracie and all proceeds are donated directly to the Cystic Fibrosis Foundation.

Teams of two checked in three fish each and prizes were awarded for total weight and biggest bass overall. Taking first place, Rusty Campbell and Tim Shreeve won the overall trophy with a total weight of 18 lbs for three large mouth bass. They won $100, which they donated back to Team Gracie, trophies, t-shirts and Craftsman Truck Series tickets to Kansas Speedway. Shawn Gould checked in the largest bass the tournament has ever seen, weighing in at 8 lbs, 12 oz. Shawn took home a tackle box, t-shirt and the “biggest bass cash pot”. Shawn, with his teammate Guy Nelson, also came in second place for overall team with a total catch of 15 lbs, 14 oz. They won tackle boxes, t-shirts and IRL tickets to Kansas Speedway. Dallas Jennings and Michael Simmons took home t-shirts when they came in third with a total of 10 lbs, 14 oz. With generous sponsor donations, everyone who competed received door prizes. At check-in, everyone enjoyed a smoked pulled pork and pork tenderloin meal, courtesy of Terry & Dixie Hoeper.

Sponsors included: International Used Truck Center of Kansas City, Insurtec Salon Insurance and Cabela’s.

Click here for more Buddy Bass Tourney Pictures

Overal Team Winners: Rusty Campbell, Grace & Tim Shreeve

Overal Team Winners: Rusty Campbell, Grace & Tim Shreeve

Biggest Bass: Guy Nelson, Grace & Shawn Gould

Biggest Bass: Guy Nelson, Grace & Shawn Gould

Dad Cooking Pulled Pork and Tenderloin

Grace's grandpa cooking pulled pork and tenderloin

Grace’s YouTube Video

I thought I would direct everyone to Grace’s YouTube video of her singing Hannah Montana with her dolls. It’s been a popular video and many have commented. I think the concensus is that she is cute.

http://www.youtube.com/watch?v=gJHqg47JQCE

Grace and Ace

Grace visited grandma and grandpa’s this past weekend and her and Ace played together. They had lots of fun at the gravel pile.

Grace’s Checkup

Thought I would update everyone on Grace’s regular CF appointment she had on Monday. She has an appointment every three months. Her appointment went great and the CF doctors were again impressed with how good she looked. She is holding steady on her growth curve and her chest X-Ray came back clear. Grace has had a little trouble with sinus infections lately and even had an eardrum burst a couple of weeks ago. Her CF seems to present itself that way more than any other. Winter is always the worst time for her and she also started kindergarten this year, so I’m sure that hasn’t helped.

The most promising thing about the appointment was what Dr. Black said about the future of CF treatment. Without getting into the specifics, he said that Grace has the two CF genes that are best to have. He is very excited about the therapy in the pipe and said he sees big changes in the next decade. That means that by Grace’s 16th birthday, he is very optimistic the treatments will be advanced to the point of minimizing the disease’s effect on her body. Good news indeed. The important things that Grace has going for her is her current good health and strong support from family and friends around her. She’s a special little girl and everyone does their best to keep her healthy.

I had to also add this picture of her making crafts. She asked me if I had “a big piece of paper”. I didn’t and when I came in her room later, she had taped together 6 sheets. She then drew a picture of a girl on it and cut her out. She’s very crafty.

Craftin

Buddy Bass Tourney Date Set

This year, we will be having the Buddy Bass tournament on April 11 in Rich Hill, Missouri. More info to come…

It’s Christmas Time!

Medical Update

Grace has been battling a cold for the last few weeks. She has lost her voice several times. That hasn’t kept her from talking, of course! She has mostly felt ok, but has had a fever a few times. We found out Friday she has an ear infection, so she started antibiotics. Hopefully she’ll kick her cough. Here’s a picture of her and her neighbor friends playing in the leaves a few weeks ago.

Pudding Good

Grace likes to cook and she came home the other day with a new recipe. It’s called “Pudding Good” and I must say, it is pretty tasty.

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