Grace had her first soccer practice today. She told me that she might be better than the other kids because she practiced yesterday. She has practice or games every Saturday for the next couple months. Here’s a picture before her first practice.
Filed under: Events on August 16th, 2008 | No Comments »
Grace had her open house for school tonight and met her teacher. Here’s a pic of her at her desk.
Filed under: News on August 14th, 2008 | No Comments »
Grace had her regular CF appointment yesterday. She now weighs 40lbs and is up to 3′ 8″. She seems to be on a height spurt right now as she has grown 2 centimeters since her last appointment. Her weight is holding which is good, too. The big thing she was able to do is blow her best numbers into the machine that measures her lung strength. On her first try, she blew a 1.21, which was an all time high. She eventually did 1.29, I believe, so we were very proud of her.
We are also considering some new exciting medications for her. One is the hypertonic saline solution that has been used for a while. It’s the one that has to do with surfers and salt water. The other medication is a clinical trial for a Denufosol. It seems to have everyone very excited as it is a possible way to improve chloride transport in the cells, which is what causes all the problems in the first place. Very exciting stuff and we are in the process of deciding what we think is best for Grace right now.
Filed under: News on July 10th, 2008 | No Comments »
Grace was in Rich Hill for the big 4th of July celebration this past weekend. We had a great time. Grace had her picture taken with a monkey and rode carnival rides. I’m sure the time was too short for her! Click here for some pics.
Filed under: Photos on July 10th, 2008 | No Comments »
Grace graduated from preschool last week and is ready for a summer of fun. Click here for pictures and below for some video.
Filed under: Events, Multimedia, Photos, Video on May 28th, 2008 | No Comments »
Filed under: Great Strides, Photos on May 7th, 2008 | No Comments »
We had the walk today and Team Gracie raised over $4,500 dollars in the fight to cure CF. That is a little less than last year, but we will hopefully make up the rest in late donations and other events throughout the year. Everyone seemed to have a pretty good time and we all ate at Mimi’s Cafe afterwards.
Click here for pictures of the event.
Filed under: Great Strides, News, Photos on May 4th, 2008 | No Comments »
Nevada Daily Mail: Story: A fine catch for a good cause
Filed under: News on April 29th, 2008 | No Comments »
The 4th Annual “Fishing For a Cure” Buddy Bass Tournament, held on April 26th in Rich Hill, Missouri, raised more money than ever in the fight against cystic fibrosis, a deadly genetic disease. With six more teams than last year, the tournament grew to 18 teams, some from as far away as Kansas City. Competition was strong on a beautiful spring morning with only three ounces separated first and second place. The charity tournament is an event to benefit Team Gracie and all proceeds are donated directly to the Cystic Fibrosis Foundation.
The first place team was a repeat winner as Tim Thorp and Clint McKinley again took home the trophies. Their three bass weighed a total of 11 lb 7 oz. They won $100, which they donated back to Team Gracie, trophies, t-shirts and IRL tickets to the Kansas Speedway. Great job and thanks Tim and Clint! There was also a prize awarded for the largest overall bass checked in. Guy Nelson won this with a catch of 5 lbs, 4 oz. Guy won a tackle box with tackle, Winchester rug and t-shirt. Coming in second place for overall team was Shawn Gould and Guy Nelson with a total of 11lbs 4 oz. They won two Abu Garcia reels with Berkeley poles, tackle boxes and string. Third place was Derek Schlotzhauer and Justin Sharp with a total of 10lbs 14 oz. They received t-shirts and two Spider fishing poles. With generous sponsor donations, everyone who competed received door prizes. At check-in, everyone enjoyed a smoked pulled pork and pork tenderloin meal, courtesy of Terry & Dixie Hoeper, Grace’s grandparents.
Filed under: News, Photos on April 28th, 2008 | No Comments »
